It's that time of year again... My wife and I are working to raise money for the Cystic Fibrosis Foundation to continue working towards more effective treatments and ultimately a cure. As many of you know, my 18 month old, Sebastian, has CF. It is a daily battle, and fortunately Sebastian has won that battle most of the days so far, but it isn't always easy. For example, we just scheduled his first surgery for March 16th.
The walk, which is an officially sanctioned CFF event, will be held on 5/20/17 at the American Legion Mall in downtown Indianapolis. We plan to make a day of it and if enough people are joining we will be grilling. Some family members plan to be there and we'd love to welcome our INGO family to join us. Details will follow on that as the day approaches. Now, onto the important stuff...
If you plan to come to the walk, or even if you just want to buy a shirt and don't want to come, they are available here: Team Sebastian 2017 Shirts
The profit from these shirts will go directly to the CFF!
If you wish to graciously donate money to the CFF, feel free to do so here: Team Sebastian-Great Strides 2017
It doesn't matter which team member you click on, it all goes to the CFF and helps fund valuable research.
This year we are also trying something new. We are selling magnets and bracelets. The magnets are business card size (and not blurry in person) and we are asking for a $5 donation for them. The bracelets are $2. I can ship them for actual cost (probably a couple of bucks).
As always, we also appreciate thoughts and prayers. Help us make CF stand for Cure Found! Thanks in advance!
#FUCF
The walk, which is an officially sanctioned CFF event, will be held on 5/20/17 at the American Legion Mall in downtown Indianapolis. We plan to make a day of it and if enough people are joining we will be grilling. Some family members plan to be there and we'd love to welcome our INGO family to join us. Details will follow on that as the day approaches. Now, onto the important stuff...
If you plan to come to the walk, or even if you just want to buy a shirt and don't want to come, they are available here: Team Sebastian 2017 Shirts
The profit from these shirts will go directly to the CFF!
If you wish to graciously donate money to the CFF, feel free to do so here: Team Sebastian-Great Strides 2017
It doesn't matter which team member you click on, it all goes to the CFF and helps fund valuable research.
This year we are also trying something new. We are selling magnets and bracelets. The magnets are business card size (and not blurry in person) and we are asking for a $5 donation for them. The bracelets are $2. I can ship them for actual cost (probably a couple of bucks).
As always, we also appreciate thoughts and prayers. Help us make CF stand for Cure Found! Thanks in advance!
#FUCF
